Functional Neurological Disorder:
It is remarkably common to have endless medical tests that show nothing. Yet you are still in pain or showing other debilitating symptoms. "There is nothing wrong with you" could be reassuring, but not if your symptoms do not then fade away. Counsellors see a lot of this and I have direct family experience of a particular kind of somatic symptoms disorder that at least has a name: Functional Neurological Disorder (FND).


FND: Lost in the Gaps
FND is a condition that is right at the juncture between mind, brain and body. It therefore tends to be appallingly neglected by the medical system – lost in the gaps between specialisms and the dualism of the prevailing Western medical model. People often spend years getting a diagnosis and even then find little support, or worse still can be accused of ‘faking it’. FND is sometimes also referred to as conversion disorder or somatisation disorder, and can often be what is behind ‘unexplained’ symptoms, because the list of symptoms it can cause is huge. But it can be explained in terms of disturbances to the stress response system and nervous system dysregulation. Through my family’s experience of this condition, I have researched the literature and connected with many patients and their families. I have found out that there are actually many approaches that are helpful for FND, many of which fall under a broad psychotherapies umbrella.
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I do not claim to have all the answers, but I am working hard to join up the dots and see the patterns that connect the sometimes mysterious-seeming symptoms. If you or a loved one has FND, please consider arranging a couple of sessions (maybe online if you are far away) where I can listen to your story. I can help you figure out why this may have happened to you, what your triggers are and what may be sustaining symptoms. I can bring together a range of approaches and resources that are safe for you to try at home, even if your health provider is still ‘ruling out other causes’.
If you wish to work longer term with me, I can bring together approaches from my brain and body-informed range of practices within a person-centred counselling framework (please see the Therapies pages for more details of how I work). FND is still an emerging field in psychotherapy and your personal presentation will be unique. However, there are reasons to think that problems with dissociation, interoception and predictive coding may be significant. I am currently researching a range of promising approaches and will be sharing what I find with other psychotherapists who may in some cases be better qualified for this work. The current situation is that most psychotherapists unfortunately haven't even heard of FND but would be in a great position to help, if only they knew more about the specifics of FND.
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With FND it’s important to challenge the disturbed neural pathways as early as possibly such that they are more easily brought back to health. Long waits not knowing what to do can make it harder in the long run.
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Unfortunately, waits for NHS services are well beyond what is acceptable and medical gaslighting is a common and crushing experience. It's important to do what you can in the meantime. I do believe that if you can get to the root of the problem, all the symptoms can resolve or at least reduce enough for you to be able to get on with your life. Please read on for some resources that can get you started.

FND Resources
'Reset and Rewire: The FND Workbook for Kids and Teens'
This book has been put together for children and teenagers, but is a beautiful way in to healing at any age. Indeed I would go so far as to recommend it for anyone who is finding life overwhelming, because similar nervous system dysregulation underlies a lot of human suffering.
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This book is aimed at professionals but is so clearly written that I think many more could benefit. Furthermore it is available free as an E-book. It shows how FND and many other somatic (in the body) symptoms are linked to disruptions to the stress response system, which involves the nervous system, immune system and endocrine system.
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A very informative website put together by a leading Edinburgh neurologist, Jon Stone, who has worked tirelessly to bring FND out of the shadows.
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Forums
There are a few forums for FND on Facebook where you may be able to connect to other people with experience of FND. The forum I find most useful for getting detailed answers is the FND subsection of HealthUnlocked
Functional Neurological Disorder - FND Hope | HealthUnlocked
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​Charities that support FND and offer lots of useful information​
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FND Hope UK - FND Hope International
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